Gathering the views of children and young people with ASD: a systematic literature review     

Beverley Tyrrell  Kevin Woods 《British Journal of Special Education》2020,47(3):376-398

According to the United Nations Convention on the Rights of the Child, children have a right to have their views listened to, and studies have shown that doing so can improve their motivation and self‐esteem. Accordingly, this systematic literature review sought to investigate how the views of children with an autism spectrum disorder (ASD), who have difficulties with social communication, may be gathered. Searches of electronic databases yielded 20 studies which met the criteria for inclusion. Semi‐structured interviews (SSIs) were popular, but there is tentative evidence that these are better suited to older, or more academically able, participants. Some of the evidence suggests adaptations to make SSIs more accessible to young people with ASD. Initial evidence has also emerged regarding the suitability of focus groups and electronic diaries. More focused evaluation by researchers of the suitability of their chosen data‐gathering methods for participants with ASD would allow broader conclusions to be drawn.  相似文献   

Genetic Polymorphism of Angiotensin II Type 1 Receptors and Their Effect on the Clinical Outcome of Captopril Treatment in Arab Iraqi Patients with Acute Coronary Syndrome (Mid Euphrates)     

Fadhaa A. Ghafil  Bassim I. Mohammad  Hussain S. Al-Janabi  Najah R. Hadi  Hayder A. Al-Aubaidy 《Indian journal of clinical biochemistry : IJCB》2021,36(1):81

Genetic variation in the angiotensin II type 1 receptor (AT1R) has an important effect on the outcome of acute coronary syndrome (ACS) initiated treatment with captopril. This study aims to investigate the impact of genetic polymorphism of AT1R (rs5186 and rs275651) on the ACS outcome in Iraqi patients treated with captopril. A total of 250 Iraqi individuals with ACS were included in this case—control study and they were divided into two study groups; Study group 1 included 125 participants who were prescribed captopril, 25 mg twice daily and study group 2 included 125 participants who received no captopril as part of their ACS treatment (control study). The AT1R gene (rs5186) CC genotype was found to be associated with ST-elevation myocardial infarction (STEMI) (Odd’s ratio (O.R) = 1.2, P = 0.7), while AC was associated with Non-ST-elevation myocardial infarction (NSTEMI) and unstable angina (UA) (O.R = 1.2, P = 0.8). AC genotype is more prone to have Percutaneous coronary intervention (PCI) after ACS attack (O.R = 1.2, P = 0.6). CC genotype had a risk to get less improvement (O.R = 1.6, P = 0.5), so might require higher doses of captopril during acute coronary insult. The AT1R gene (rs275651) AA genotype was associated with UA (O.R = 1.3, P = 0.9). AA and AT genotypes were more prone to have PCI after ACS attack (O.R = 3.9 P = 0.2, O.R = 3.5, P = 0.3 respectively) and thus requiring higher doses of captopril. We conclude that the AT1R rs5186, rs275651 genetic polymorphisms might partially affect the clinical outcome of ACS patients treated with captopril and might have captopril resistance which requires higher doses.  相似文献   

‘He is the Vagabond that Hath No Habitation in the Lord’: The Representation of Quakerism as Vagrancy in Interregnum England,c. 1650–1660     

David Hitchcock 《Cultural and Social History》2018,15(1):21-37

This article examines the printed representation, and prosecutorial characterisation, of the movements, actions and motivations of early Quakers as vagrant. It argues that the prevalence and power of representing (and subsequently treating) early Quakers as vagrants is an understudied aspect of the social and cultural history of the Society of Friends, particularly in Interregnum England. As evidence, it interrogates a furious pamphlet debate between mid-century religious writers and preachers, who devoted much time and ink to painting Quakers as mendacious vagabonds, and Quaker ‘First Publishers’, who responded at length and in a striking way to these accusations. The article concludes that these images of Quakerism as a form of ‘spiritual vagrancy’ created historically significant echoes in English and Atlantic culture.  相似文献   

Subjective well-being in cultural advocacy: a politics of research between the market and the academy     

Susan Oman  Mark Taylor 《Journal of Cultural Economy》2018,11(3):225-243

This paper responds to a trend of contracting out subjective well-being econometrics to demonstrate social return on investment (SROI) for evidence-based policy-making. We discuss an evolving ecology of ‘external’ research taking place ‘between’ the academy and commercial consultancy. We then contextualise this as waves of research methodologies and consultancy for the cultural sector. The new model of ‘external between’ consultancy research for policy is not only placed between the University and the market, but also facilitates discourse between policy sectors, government, the media and the academy. Specifically, it enables seductive but selective arguments for advocacy that claim authority through academic affiliation, yet are not evaluated for robustness. To critically engage with an emergent form of what Stone calls ‘causal stories’, we replicate a publicly funded externally commissioned SROI model that argues for the value of cultural activities to well-being. We find that the author’s operationalisation of participation and well-being are crucial, yet their representation of the relationship problematic, and their estimates questionable. This case study ‘re-performs’ econometric modelling national-level survey data for the cultural sector to reveal practices that create norms of expertise for policy-making that are not rigorous. We conclude that fluid claims to authority allow experimental econometric models and measures to perform across the cultural economy as if ratified. This new model of advocacy research requires closer academic consideration given the changing research funding structures and recent attention to expertise and the contracting out of public services.  相似文献   

图书馆科普教育现状与发展路径探究——基于25个省市88家科普教育基地调查     

徐基田 《图书情报工作》2020,64(9):35-45

[目的/意义] 图书馆肩负着实施科普教育的法定职责，拥有品种多样、内容丰富的科普文献与信息资源的图书馆，在开展科普教育方面具有得天独厚的优势。图书馆科普教育起步比较早，2005年，中国图书馆学会成立科普与阅读指导委员会；但在图书馆业界，科普教育只是零星的点缀式服务创新探索，尚未成为常态化服务项目。在依法治馆、创新发展的新时代，寻求图书馆科普教育发展路径具有较强理论和实践意义。[方法/过程] 通过互联网、微信等社交网络平台，对图书馆科普教育基地建设的状况进行调研，从基地等级、基地类型、基地数量、区域分布、有效期限以及认定依据等方面进行深入分析，并对图书馆实施科普教育提出发展路径以供选择。[结果/结论] 图书馆科普教育应坚持基地建设与科普服务相结合、阅读推广与全民科普相融合、科普与游学并举等策略，走设施、资源、服务"三位一体"的持续稳健协调发展之路。  相似文献   

政府数据开放中的公众参与模式:理论构建与案例实证     

陈朝兵  简婷婷 《图书情报工作》2020,64(22):58-68

[目的/意义] 探讨政府数据开放中公众参与的理论模式，旨在指导政府部门有效实现公众参与数据开放的政策目标，以及推进政府数据开放中公众参与议题的研究进展。[方法/过程] 采用文献分析法、逻辑分析法和案例分析法，同时以公众参与阶梯理论作为分析工具，构建并实证政府数据开放中的公众参与模式。[结果/结论] 政府数据开放中的公众参与可从理论层面构建为告知型参与、咨询型参与、合作型参与和授权型参与4种模式，其核心涵义分别是政府向公众传达信息、政府咨询公众意见、政府与公众平等合作、政府与公众共同治理。这4种政府数据开放公众参与理论模式一方面在政府意图、主导力量、信息流动、公众信息知晓度和公众自治程度方面存在明显的特征差异，另一方面从国内外政府数据开放公众参与实践案例中获得良好的经验支持。  相似文献   

图书馆借助新媒体传播科学文化的实践研究——以中国科学院文献情报中心“科学人讲坛”为例     

于博雅  郑康妮  陈朝晖 《图书情报工作》2020,64(24):48-56

[目的/意义] 以"科学人讲坛"在"新媒体+科学文化内容"方面的有序推进为主要案例，论述新媒体技术在图书馆科学文化传播活动中的具体应用，找到专业图书馆科学文化传播工作优势及发展方向。[方法/过程] 梳理"科学人讲坛"讲座内容、推送渠道及观看数据，通过数据分析影响科学文化传播效果的主要因素。[结果/结论] 新媒体及时、灵活、强互动等特性在科学文化传播工作中起到了良好的效果。图书馆的服务意识、丰富馆藏及科学人文精神与新媒体技术优势的结合，使科学文化传播工作中公众的参与兴趣得到了极大提升，拉近了科学与公众间的距离，提高了科学文化传播效果。  相似文献   

人工智能时代情报学发展走向之辨——对本体论、感知论、方法论、服务论的再思考     

曹文振  赖纪瑶  王延飞 《情报学报》2020,39(5):557-564

人工智能相关技术的迅猛发展和逐步普及,使得情报学难以避免人工智能的融合趋势,无论这种融合是主动为之或是被动选择。然而学界对人工智能时代情报学学科的发展走向并未予以充分探讨,大部分研究均将焦点置于大数据与下一代互联网环境中进行论述。本研究将人工智能时代情报学学科走向解构为"本体论""感知论""方法论""服务论"四个论题,对每个论题借由理论面向与实践面向的二分法展开阐释,并从整体视角上提出应在人工智能洪流中找准情报学定位,不能忽视"人"在情报学中的价值以及重视跨学科融合、跨领域应用的发展趋势。  相似文献   

欧洲九国共产党情报局机关刊物《争取持久和平,争取人民民主!》与中国关系考述(1949-1956)     

哈战荣 《图书馆杂志》2020,(4):21-26

《争取持久和平,争取人民民主!》是20世纪40年代中后期,欧洲九个社会主义国家的共产党和工人党为了一致行动而建立的情报局机关刊物。该刊物对新中国初期我国经济社会建设及成就进行了大量宣传与报道,对加强我国与世界其他爱好和平、渴求民主的各国人民加强互信、长存友谊贡献很大,也对当前学者研究新中国初期我国经济社会发展的过程、成就和经验等提供了原始史料,学术研究意义也很重大。但是,目前对这份刊物及其发挥过的重大作用了解的人少之又少,时值中国共产党成立100周年之际,对其创刊与发行的历史过程进行回顾、宣传中国社会经济发展的全貌进行展示、推动世界社会主义运动的作用进行肯定,意义都很重大。  相似文献   

科技期刊编辑在学术生态圈构建中的作用与作为     

邢爱敏 《编辑学报》2020,32(5):586-590

当前学术生态现状堪忧,由此引起了大众对科技期刊学术质量、学术操守的普遍质疑。而科技期刊编辑在学术传播中的主体性质决定了其在学术生态圈构建中具有不可推卸的责任。同时,基于严谨的治学态度、慧眼识珠的才能、良好的沟通交流能力以及资源意识的自我培养,科技期刊编辑在构建学术生态圈方面的潜能也被充分激发,“问题前置化”策略防范学术不端、保持终身学习态度以提高自身学术素养、组建优质专家库以打造学术共同体这3项措施则体现了科技期刊编辑在构建学术生态圈中的担当和作为。  相似文献